Showing posts with label Spaulding Rehab Hospital. Show all posts
Showing posts with label Spaulding Rehab Hospital. Show all posts

Saturday, March 22, 2014

Five Years Ago: Ode to Marathon Training-Poetry in Motion

It's fun to take a look back to five years ago when we were training for the 2009 Boston Marathon. What a journey. From a wheelchair, leg brace, polio shoes to running shoes, to taking a total leap of faith saying that I, a survivor of paralytic polio and having been diagnosed with post polio syndrome would run the 2009 Boston Marathon for Spaulding Rehab Hospital.

When I contracted paralytic polio in 1959, I was blessed with a physical therapist, Miss Holly, who would read Dr. Seuss to me before every painful physical therapy session. She would have me recite my favorite Dr. Seuss books with her to ease the pain of the treatments. It's really remarkable how years later, after being diagnosed with post polio syndrome, a "progressive neuromuscular disease" that I would turn to the healing cadence of Dr. Seuss only now I was the one holding the pen.

Writing poetry released my unconscious desire to feel healthy and whole despite physical appearances to the contrary. And when it came time to train for the Boston Marathon, my trusty pen helped me to visualize and harness strength fueling me through those long runs and to also capture my journey.

Here is one of my favorites that I wrote 5 years ago today:

Ode to Marathon Training - March 22, 2009

Blisters, black toes, aches and pains
A change in my routine
Long training runs, the hills, the sprints
Keep running clothes fresh and clean.
Carbo load and plan each meal
Power gels and gatorade
No matter what the weather
No time to be afraid.
Humid – hot or freezing cold
Snow against the face
Wind or sun or raining
Those running shoes I must lace.
What mile is this how long we been out
Check heart rate drink H20
Meltdowns joys and triumphs
Only a few more weeks to go.
Heartbreak Hill won't break my heart
This year has been the best
Found myself and made new friends
I feel incredibly blessed.



One more long run and then taper time. My love and prayers are with all getting ready to run long and show the world what Boston Strong is all about.





Tuesday, February 18, 2014

And Now a Word About Spaulding Rehabilitation Hospital

On my way to Aquatics Therapy Class this morning with Karis, I bumped into Suzanne Showstack Adams. From my soon to be released memoir, "Coming Home: A Memoir of Healing, Hope and Possibility":

I met Suzanne Showstack, now Adams in the fall of 2007. I told her that I was going to have a book of poetry published and wanted to donate a portion of the proceeds to Spaulding. We met for lunch at Legal Seafood in Chestnut Hill. I was still sporting my short leg brace and bright blue cane but was feeling much better since I had quit my job at the VA and took the summer to begin the healing process. I could experience Suzanne’s warmth and compassion through our email exchanges scheduling our luncheon. She took notes during our lunch intrigued by my healing journey. I told her how important it was for me to give back to Spaulding.




Suzanne shared my story in hospital newsletters. We thought that I was a remarkable recovery back then...Suzanne and I went on to run the 2009 Boston Marathon together as part of the Race for Rehab team



and we were together on 4/15/13 at the Mandarin Oriental Hotel.



Suzanne and I hadn't seen each other since Tom and I took a tour of the new facility the week after the bombings. As she greeted Tom and me she said, "I was wondering when I was going to see you. I know you're here all the time." I noticed how we hugged each other just a little bit tighter ...

We reminisced and caught up and then I went off to Aquatics and she off to her work in the Development Office.

Spaulding has been a part of my life since October 2006 when I made that phone call to the International Rehabilitation Center for Polio at Spaulding. Whenever I needed anything related to care and management of being a polio survivor, Dr. Darren Rosenberg and the team of therapists have been available to me.

While taking the tour of the new Charlestown Facility, I saw the Aquatics Therapy Center


and took their flyer about their community classes. Every week, twice a week, since last Fall, I have been finding and building my strength in the healing waters of the beautiful Aquatics Therapy Center. It has been life changing for me as a survivor of paralytic polio and trauma and is the perfect complement to my running and my biweekly sessions with Joseph. I can feel for the first time in my 7+ years of my healing odyssey that I am on sure footing climbing to higher and higher ground:



This beautiful plaque on the grounds of Spaulding says:

Rarely does the path to recovery follow a straight line
Like a tidal stream, it bends and twists
It surges and trickles
It ebbs and flows.
That is why rehabilitative care must be fluid too.
Spaulding takes an approach to patient care that is flexible, highly personal and informed by a deep understanding that while every patient strives to reach higher ground, no two rehabilitative journeys are ever alike.

As wonderful as I feel and as well as I am doing, I do live with a spinal cord injury. Karis knows how to guide me and everyone in her classes, to challenge myself yet not over do. She provides me with support, encouragement, reminds me of how strong I am yet listens and is so understanding when I come face to face with my challenges.

Karis was at the Mandarin although we didn't know each other at the time. When I heard she was going to run the Boston Marathon even though she had never run a day in her life, I told her that I would support her run in any way I could. She is running for Spaulding Rehab Hospital to raise money so that patients' lives and the lives of their families can be healed after whatever life throws their way.

I know how Spaulding helps me to find higher and higher ground in my healing journey through the Aquatics Therapy program. It's a comfort to know that there are staff at the ready to support me as I age as a survivor of paralytic polio.

Please join us this Thursday at the Limelight Stage and Studios for Karis' Karaoke for a Kause with all proceeds benefiting Spaulding Rehab Hospital.

With your minimum $20 donation, you'll be entered to win an autographed Tom Brady Jersey and as second prize, a Joy of Sox Movie DVD.

And everyone comes away a winner. The owner of Jacob Wirth Restaurant in Boston has generously donated as many gift certificates as people who come out to Sing Boston Strong. One of the gift certificates is for $50, there are four for $25 and the rest are for $10. If 80 people show up 77 get half their money back, 4 get their donation back and one comes out ahead. And I must say, Jacob Wirth's has the most amazing sweet potato fries I have ever had in my life!

And don't worry if you're too shy to step up to the mic, we'll have plenty of people singing strong.

Cash bar and appetizers.

Silent Auction Items:

Autographed books by Bob and Lee Woodruff

Pair of Celtics Tickets - face value $375 to 3/9 game against Pistons

Gift certificate to Marathon Sports and The Joy of Sox Movie DVD

Gift certificate to Stapleton Floral Design

Cape Getaway package

If you are unable to join us, with a minimum donation of $35, we'll enter you in the drawing for the Tom Brady autographed jersey to be held on 2/20/14.

Read Karis' story on her fund raising page and make your donation today. In the comments section write "Karaoke."

Every day I give thanks for the care I have received and continue to receive at Spaulding. I bless the family that donated money for the Aquatics Therapy Center and all who have donated to support this place of healing. As Karis so eloquently states on her fund raising page:

Please consider making a donation to support my fundraising efforts as I work to raise $5,000 to benefit Spaulding Rehabilitation Hospital. Every dollar counts and will directly benefit the facility that gave 33 bombing survivors, and many others, their lives back. I am running the Boston Marathon to honor those survivors and memorialize those who lost their lives last April.


We ARE Boston Strong and will be Singing Boston Strong on Thursday. Won't you join us?

#word





Friday, February 22, 2013

Rewriting The Story




On Wednesday, I returned to Marathon Sports Brookline where, five years ago just around this time, Spencer Aston fitted me for my first pair of running shoes - I mean my first pair of running shoes - ever - in my lifetime. Spencer just happened to be working at the store on Wednesday. He is a wonderful musician so only works part time at Marathon Sports. What were the chances he'd be working on the day I decided to get fitted for my first pair of Vibrams.




As soon as I put on the Vibrams, I knew they were right for me. It's like having a glove on your foot. What a contrast to big, bulky shoes with braces and orthotics that I wore for years after contracting paralytic polio. What a contrast to what I was wearing five years ago



until I was fitted with my first pair of running shoes.



The Vibrams are a symbol of my transformation. Being able to wear them a manifestation of my healing journey.

This journey is not just about me though. I ran the 2009 Boston Marathon for several reasons which are now clear to me four years later. I felt a call - a stirring in my Spirit in every fiber of my being that I was meant to run Boston not just for me but for people who were given a diagnosis and told they can't or shouldn't with the subliminal message to not live life to the full for fear of the body's deterioration. I ran Boston to raise awareness of "post polio syndrome," which I now know is multi factorial in its nature, can be healed, and my quality of life dramatically improved with nutrition, body work, meditation and reconnecting with my sacred earthly home. As painful as the journey may be - it is incredibly joyous, liberating and life giving. And last but certainly not least, I wanted to say thank you to Spaulding Rehab Hospital for helping me to "find my strength" and take the first steps on my healing journey. We raised $10,535 for Spaulding Rehab and I had the experience of a lifetime.



I am rewriting the story of my childhood fraught with chronic illness and violence ..... And I know that in so many ways, this story has a happy ending ....

Marathon Metamorphosis - May 7, 2008 from Songs of Freedom:Poems From a Healing Odyssey Volume III:Celebration of Life to be released at the end of 2013. Volume I:Elements of Healing is now available on Amazon.

Pounding pavement, feeling strength the journey now begun
training for the race of my life a 26.2 mile run.
Feeling God in every step in every beat of my heart
I undertake this challenge as a new chapter of my life I start.

I ran around in circles carrying baggage by the ton,
destination was survival hardened shell let in no one.
Fear and worry doubts prevailed, adrenaline in my veins
a headless horseman running wild no one to take the reins.

Stopping in my tracks I froze no longer could I move -
clawing, fighting had to cease nothing more to prove.
God's grace like a magic wand, a softness and a glow
emerging from a troubled past my blood began to flow.

Loving teachers lit the way their love a healing balm -
focusing on who I am now brings a sense of calm.
Stretching every muscle feeling God in every cell
wholeness now a blessing out of prison - no more hell.

The race is still a year away each day my dream I see
mind, body, spirit tuning turning toward the Voice of Thee.
Flexing what had once been stiff to brace against the pain
old habits die and I'm reborn to write a new refrain.

And when the starting gun goes off poised with strength and grace
the thunder of the running feet will help me set my pace.
But the starting line's the finish my race already won
achieving the impossible preparing for this run.

The healing power of self love and faith to spark the flame
transformed me from a victim who was filled with so much shame.
Unearth my buried treasures my inheritance I find
connected to my Loving God in my heart and mind.

And when I cross the finish line the greatest cheer of all
has been this magnificent journey of answering God's call.


From my heart to yours
With total love and deepest gratitude,
Mary

MAY ALL BEINGS BE HAPPY AND FREE!








Thursday, September 27, 2012

Movie Premiere - The Joy of Sox



"Amazing things happen when large crowds gather to share positive emotions...I was the guinea pig to test whether the heart energy of joy is contagious..." Eric Leskowitz, MD

Seven years ago, on September 26th, 2005 I was reading the Boston Globe and an op ed editorial caught my eye. "Can Weird Science Save The Sox?" It was written by Rick (Eric) Leskowitz with whom I trained at the VA during the 1983-1984 season ahem academic year. I felt this energy coming from him across the conference room at 17 Court Street which was then the home for the VA outpatient clinic. When I saw the op ed piece, I felt a jolt of energy go through me. We have to get Rick to come back and do an in service for social work I pleaded with the chairs of our continuing education committee. They pooh poohed the idea saying it wasn't relevant to clinical social work practice.

Fast forward to 2007. I leave the VA and I begin sharing my journey on the world wide web. A polio survivor from Texas emailed me asking if I could help her find resources. Another bolt of energy went through me and I reached out to Rick who is the director of Integrative Medicine at Spaulding Rehab which coincidentally is where I received my post polio treatment. We reconnected and met for lunch. Twenty five years later and we felt like old friends connecting with each other. We have had many synchronicities happen with each of our journeys - Rick with his Joy of Sox movie and me with my post VA life journey.

At the premiere of Rick's movie Sunday night at the West Newton Cinema, Rick talked about the energy streams that were in the room; how we each contributed in some way - either through the energy of money or the energy of being a fan or the energy of being a friend to the completion of his movie - 7 years in the making.

But this isn't just Rick's movie nor is he doing this for fame or ego. Rick is a holistic psychiatrist with a passion to share knowledge for the good of the whole on how we can live more joyful, compassionate, loving and peaceful lives. He explores the science behind the field of energy medicine using the Red Sox as a 'case study.'

We are all a case study participating in amazing phenomena every day. We only need to awaken to what Rick calls 'the intangibles.' I had never been to a movie premiere before. The celebrities on the red carpet at the West Newton Cinema included fans from Red Sox nation who appear in the movie, staff from Spaulding Rehab Hospital including an energy healer who supported me during my Boston Marathon run who I had not seen in a couple of years, and supporters of Rick and his stellar creative team who helped create The Joy of Sox.

From the moment I stepped into the theater I began to smile.


I turned to my husband and said, "I have a really cool life." I thought about all the twists and turns and amazing coincidences that brought me to that moment and all that aligned for Rick to be able to bring The Joy of Sox to the big screen. The energy was infectious. The collective joy was contagious. Open your heart and your mind to embrace the science and possibility expressed in this film. Join the joy. "There's magic in the air."



For more information about The Joy of Sox and to purchase copies of the book and pre order your copy of the DVD visit the Joy of Sox website.

Enjoy my previous blog posts about Rick and The Joy of Sox journey
Joy of Sox book review

Count Your Blessings for a Happy and Healthy Heart


Opening Day

The Discovery Channel or You Can Teach an Old (Downward) Dog New Tricks


On Being a Champion


From my heart to yours
With total love and deepest gratitude,
Mary

MAY ALL BEINGS BE HAPPY AND FREE!


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