"The best we can hope for is to stabilize the deterioration where it is now but it's important that you be prepared for the likelihood that you will be in a wheelchair at some point in the future." That's what I was told seven years ago. Dr. Rosenberg meant well - he really did - based on medicine's understanding of the sequellae from paralytic polio, post polio syndrome is deemed a progressive neuromuscular disorder.
It's been quite the roller coaster ride of a healing odyssey these past 7 years, and today marks a milestone for me. After a few months working in twice/week Aquatics Therapy classes at Spaulding Rehab, I knew the time was right for me to challenge myself.
I told our therapist, Karis, that I wanted ankle weights.
She brought over the 1 pound weights and checked in with me throughout class asking me how I was doing.
I felt challenged and I felt my body working in new ways. While doing squats, I could feel the energy and strength flow from my feet to the crown of my head. I could "feel the burn" in new ways during all of the exercises.
Tonight I am sore and incredibly delighted that I have taken another step forward on my healing journey - this time with one pound ankle weights on.
Moving Forward from A Celebration of Life now available on Amazon
Tethered and tied up to what once was
my form reappears
now training for a 5K
a surprising bounce in my step
a lightness in my heart
how is this possible?
A beacon of light for others
of what IS possible
now defying the odds
trusting in this miracle
p.s. The other day in Aquatics Class as I got my weights, I happened to glance at the color coded chart for the ankle weights. I am actually using two pound ankle weights!